Take note: All of these comments are unhelpful—and can even be hurtful.
Vitiligo is a skin condition that affects millions of people worldwide, causing patches of skin to lose their natural color. The color of our skin is determined by a pigment called melanin, which is produced by melanocytes. When a person has vitiligo, these melanocytes either stop functioning or die, resulting in the loss of melanin production. This condition can affect anyone, regardless of their age or ethnicity, although it may be more noticeable in individuals with darker skin tones. While vitiligo is not life-threatening, it can profoundly impact an individual’s physical appearance and emotional well-being.
Living with vitiligo can be challenging, especially when it develops during childhood, a period when children are learning about their bodies and forming their identities. Those with vitiligo often face bullying and insensitive comments, making it essential for us to be mindful of our words and actions when interacting with individuals living with this condition. In this exploration, we will hear from four individuals who have vitiligo and learn about the comments and behaviors that can be hurtful or insensitive when engaging with someone affected by this condition.
1. Avoid Asking if Vitiligo Is Contagious
One of the most important things to remember when interacting with someone who has vitiligo is to avoid asking if the condition is contagious. Mariah Perkins, a 22-year-old living with vitiligo, shared her experience of someone asking her this question. Such inquiries can deeply affect individuals with vitiligo, as they imply that their skin is undesirable or even repulsive. For many, vitiligo onset occurs during adolescence, a vulnerable period when individuals may be particularly sensitive about their appearance.
Mckyla Crowder, who has lived with vitiligo since the age of 4, echoed this sentiment, emphasizing the importance of treating people with vitiligo with the same respect and consideration as anyone else. She emphasized that individuals with vitiligo are still the same on the inside, and their condition does not define their worth or character.
2. Avoid Recommending Products to “Fix” Their Skin
Another insensitive comment is suggesting products that claim to “fix” or conceal vitiligo-affected skin. Marian De Vos shared her experience of being referred to a product that promised to provide full coverage for her skin, similar to a foundation for the entire body. While some people with vitiligo may choose to cover their skin using makeup, it is a deeply personal decision that should not be influenced by unsolicited product recommendations.
Mariah Perkins, too, went through a phase of using makeup to conceal her vitiligo, a practice that was both time-consuming and expensive. Eventually, she made the courageous decision to stop using makeup to hide her vitiligo. Similarly, Mckyla Crowder used makeup and layers of clothing to hide her symptoms, especially during high school, when she became acutely aware of her differences. However, she eventually embraced her true self and found a supportive community that helped her come out of her shell.
3. Avoid Labeling Their Skin as “Flawed” or “Imperfect”
When interacting with someone with vitiligo, it is vital to refrain from using derogatory terms like “flawed” or “imperfect” to describe their skin. Such comments can have a profoundly negative impact on their self-esteem and body image. As Marian De Vos eloquently put it, referring to individuals with vitiligo as “imperfect” can cause them to doubt themselves and their self-worth. Embracing one’s appearance is challenging enough, and using derogatory language only adds to the burden.
Mckyla Crowder emphasized that vitiligo is not a flaw, and it does not cause physical pain. Just as you wouldn’t label someone else’s condition as a “flaw,” it is crucial to extend the same courtesy to individuals with vitiligo.
4. Do Not Comment on New or Changing Spots
Vitiligo is a condition that typically progresses slowly over time, with pigment loss spreading to involve more of the skin. Rarely, some individuals may experience repigmentation. It is essential to avoid pointing out changes in someone’s vitiligo-affected skin, as they are acutely aware of these developments. For individuals living with vitiligo, accepting the changing nature of their skin can be a challenging journey.
Chelsey Hamilton, a 25-year-old with vitiligo, shared her experience of friends noticing new white patches on her skin. Such comments, even when well-intentioned, can be uncomfortable for individuals with vitiligo, as they are still coming to terms with their changing bodies.
5. Respect Their Privacy and Choices
When meeting someone with vitiligo for the first time, it is important to respect their privacy and choices regarding their condition. Not everyone is ready to discuss or acknowledge their vitiligo openly, and making unsolicited comments about their skin can be distressing. Each person’s journey with vitiligo is unique, and some may not be ready to embrace their condition fully.
In conclusion, understanding and supporting individuals with vitiligo requires sensitivity, empathy, and respect for their unique experiences and choices. Avoiding hurtful comments and behavior and treating them with kindness and understanding can go a long way in creating a more inclusive and supportive society for those living with vitiligo.